Challenges are gifts that force us to search for a new center of gravity. Don’t fight them. Just find a new way to stand.

- Anonymous

online resourceS

FINDING RESOURCES THAT ARE RIGHT FOR YOU

Whether you are newly diagnosed or have "been around the block," this is where you will find the links to vital information and resources to international, national, and state government, libraries, private and non-profit agencies, schools and vocational training, and other groups and organizations..

Newly Diagnosed?

You can find general and in-depth information and resources on eye diseases at:

American Printing House for the Blind

Since 1858, The American Printing House for the Blind has operated in Louisville, Kentucky as the world’s largest nonprofit organization creating accessible learning experiences through educational, workplace, and independent living products and services for people who are blind and low vision.

Our mission is to empower people toward greater independence and lifelong success by providing free curated information and resources to assist children, parents, job seekers, and adults who are blind or low vision.

1839 Frankfort Avenue
P.O. Box 6085
Louisville, KY 402-0085
1-800-223-1839
(502) 895-2405

www.aph.org

Foundation Fighting Blindness

A great starting point. The Foundation covers a large amount of information, including stories and resources, retinal education, genetic testing, research, local chapters, fundraising for research, and more. They are "the world's leading private source for inherited retinal disease research funding." They have a video series on eye diseases, and have information on genetic testing , clinical trials , research , resources, and more.

The diseases they cover are:

Achromatopsia , Bardet-Biedl Syndrome , Best Disease , Choroideremia , Leber Congenital Amaurosis , macular degeneration , retinitis pigmentosa , Refsum disease , Stargardt disease , Usher syndrome , X-Linked retinoschisis (XLRS) , and a few more rare conditions .

https://www.fightingblindness.org/

American Academy of Ophthalmology

The American Academy of Ophthalmology is the world’s largest association of eye physicians and surgeons. A global community of 32,000 medical doctors, we protect sight and empower lives by setting the standards for ophthalmic education and advocating for our patients and the public. We innovate and support research to advance our profession and to ensure the delivery of the highest-quality eye care. They also have resources to help you find the right eye professional.

Street Address:
655 Beach St.
San Francisco, CA 94109
Tel: 415.561.8500

Mailing Address:
P.O. Box 7424
San Francisco, CA 94120-7424
Fax: 415.561.8533

https://www.aao.org/